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Rachel (rachel2000)


March 17, 2009


St. Louis, Missouri


January 4, 1985


Hodgkin Lymphoma


August 2008


Stage 4


Yes


Lymph Node Removal, Lumpectomy


yes


Vinorelbine (brand name: Navelbine), Gemcitabine (brand name: Gemzar), Adriamycin (chemical name: doxorubicin)


Cancer Survivor


How hard it is to get rid of.


Your close ones are affected and changed, too, for better or worse.


Good thoughts and prayers and any general pointers from native New Yorkers


I'm taking a slew of herbal supplements, my new expreriment.


After successful radiation to the chest, doctors' found it had metastasized to my abdominal lymph nodes.


Received 5 weeks of localized radiation to the chest


Trying to shrink tumors down to nil before going ahead with stem cell transplant. I now will be needing an outside donor transplant.


Lenalidomide- Generally well tolerated





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rachel2000's Cancer Blog

August 21, 2009

Howdy, all.

I’ve been taking the lenalidomide pills now for a week and am still in one piece. So far, none of the nasty side effects have popped up, so (without jinxing myself) I may be in the clear. I was taking it in the evening but figured out that it was keeping me up at night and giving me crazy dreams. I had one dream where I had the ability to bounce really high but couldn’t control the landing. For some reason, I was carrying a stack of important papers and wound up scattering them every time I landed. Of course, I could do that in real life without the bouncing!

It’s still too early to tell if the drug is working but I can say that I’m feeling better. My energy and appetite have come back and I’m generally feeling good. I’ve been using my energy to get my house back in order, something my husband must appreciate very much. I am so impressed with the support and help he’s provided me and don’t quite know how to make it up to him. He’s managed to work full time, take care of me, and keep the house together when I haven’t felt up to speed. I jokingly told him that when things get back to some normal he could quit his job and be unemployed for a year, too. I’m afraid he might take me up on the offer.

So I guess the game now is to wait and see if the lenalidomide is working. I’m fully optimistic that it will do the job. The more I research it, the better I feel about being on this drug. It apparently has worked well for others with recurrent Hodgkin’s. I hope to be among that crowd soon.

Have a good weekend, readers!

Terry is a gem, for sure – with a whole furry fan club to tell him every day!

Guess this means you’ll be up to hotrodding next weekend?





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